Plenary Session 24 February 2022
Dear colleagues,
World Rare Disease Day was established in 2008 by the European Organisation for Rare Diseases and is commemorated on the last day of February each year, to raise awareness of rare diseases and to coordinate medical, social and support services for people with rare diseases worldwide.
Among the 300 million people with rare diseases are children and adolescents who, if not given the right medication in time, gradually become unable to support themselves and are unable to meet their basic social needs.
In June this year, the European Organisation for Rare Diseases will organise its 11th conference on the subject, which will include discussions at national and global level and actions to achieve a collective European policy on rare diseases that will engage Member States in the post-pandemic era. This European Organisation for Rare Diseases 2022 conference has been designated as an official event of the French Presidency of the Council of the European Union, which demonstrates the EU's considerable support for making rare diseases a priority issue.
As the House of Representatives, we express our full support and solidarity with our fellow sufferers and their families and, listening to their needs, we commit ourselves to making every effort to create conditions that will help improve their health and ensure equal rights and opportunities for all people with rare diseases.
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