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- Ελληνικά
It is with great pleasure that I am with you today to welcome the opening ceremony of the 35th Annual General Assembly of the Cyprus Myopaths' Association. I would like to express my support for the work of your Association and note that I am reassured by the thought that we are all here working together to offer relief and hope to people with myopathies.
Myopathies are a heterogeneous group of diseases with multiple etiologies, but they have in common that they are diseases of the muscular system which are classified as rare diseases.
Since its establishment in 1986, the Cyprus Myopathy Association (MDA Cyprus) has brought under its umbrella the whole spectrum of myopathies and collaborates with many institutions to provide the necessary support to our fellow citizens who need it. In collaboration with the Cyprus Institute of Neurology and Genetics, he organizes the Cyprus TELETHON. An institution through which the public is informed about neuromuscular and genetic diseases, the research programmes of the Institute of Neurology and Genetics are supported, the paramedical and technical equipment of the Institute is upgraded and at the same time the important needs of the Cyprus Myopathy Association are covered.
It is known that when a family member suffers from myopathy, this is enough to make the whole family sympathetic.
It is known that when a family member suffers from myopathy, this is enough to make the whole family sympathetic.
It is known that when a family member suffers from myopathy, this is enough to make the whole family sympathetic. No one can understand the problems faced by a family better than other people with common experiences. That is why I would like to congratulate the joint efforts you are making as organised members of the Cyprus Myopathy Association to raise awareness among the general public.
As the Ministry, recognising the specificity of patients with myopathies, we have always been at their side by offering a variety of services in the field of Rare Diseases, including myopathies.
In an effort for a holistic and organized approach to Rare Diseases, the Ministry of Health decided to create a National Committee for Rare Diseases. The main role of the Committee is to advise the respective Minister of Health on the formulation of policies to be implemented for the benefit of patients.
Friends
We appreciate the voluntary contribution in the health sector, where the needs and expectations of patients are constantly increasing. Organized voluntary action in Cyprus has been transformed into the fulfillment of moral responsibility, developing such dynamics that makes it a basic complement of the welfare state.
In concluding my speech I would like to say a big thank you for your dedication to the excellent voluntary work you do through your Association and for the love shown to our suffering fellow human beings. The Ministry of Health is always at your side.
I wish you all a successful General Assembly and achievement of the goals you have set.
(EATH)
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