A popular YouTube star who suffered from Benjamin Button's disease[/B] has died at the age of 15. Adalia Rose, from Texas, was diagnosed with progeria, a genetic condition known as "Benjamin Button's disease", when she was three months old.
The very rare condition, which affects fewer than 500 children worldwide, causes premature aging in the body and has an average life expectancy of 13 years. As she grew older, Adalia became a household name on social media, amassing 2.91 million subscribers on YouTube and 379,000 followers on Instagram.
On January 12, her family informed her followers that the young girl had passed away.
"At 7 p.m. Adalia Rose Williams left this world. She came into it quietly and left it quietly, but her life was anything but quiet," the teen's family wrote on Instagram.
"She touched millions of people and left an indelible mark on everyone who knew her. She is no longer in pain and is now dancing while listening to the music she loves. I really wish that wasn't the reality, but sadly it is. We want to thank everyone who loved and supported her," the post read.
"Thank you to all her doctors and nurses who worked for years to keep her healthy. Her family would now like to mourn this huge loss in private."
A few hours earlier, Adalia - or someone posting on her behalf - had posted an Instagram story showing a video of a plant.
[/P]"No... just no.... why is my family like this?" the caption read.
Antalya's mother, Natalia, had told the New Zealand Herald in 2018 that doctors realised something was wrong with the baby a few months after he was born. Doctors realised that his growth was not normal and that the skin on his belly was too tight and looked different. At three months the doctors came to a diagnosis and the baby soon began to lose his hair. His veins became visible and his skin thinned.
"I was a single mother at the time, so when I received the diagnosis I was on my own. It was just her and me and I felt really lost," Natalia said.
She then met Ryan and Adalia had siblings.
"We don't use the word 'progeria' very often, we just treat her like a normal 11-year-old child and try to give her the best life possible," Ryan had said.
Adalia had difficulties and sometimes said she wanted to be like everyone else and be able to do what everyone else did.
But then she would say: "Who needs hair anyway, I have a bunch of wigs, I can have different hair every day."
Natalia said her daughter was "wild" and that she loved watching her grow up.
"Adalia completely changed my life. I wasn't a bad person, but I wasn't good to myself. I wasn't grateful. I didn't realize what life was until she was born," her mother said.
Adalia's YouTube success had its perks. Her dance videos went viral in 2015. In December 2019, Jennifer Lopez's designer Michael Costello gave the YouTube star two dream dresses for her 13th birthday.
One of the dresses was of Princess Jasmine from the movie "Aladdin." The other, was a fuchsia dress, like the one JLO would wear on the red carpet.
"People always ask me who my favorite celebrity wearing my clothes is and I always have a hard time coming up with a name," the designer had written on Instagram.
"For me, the most satisfying part of it all is how my dress makes them feel. When someone wears one of my creations, I want them to feel beautiful, confident and absolutely fearless," the designer said.
"Thank you so much Adalia for giving me the opportunity to dress you!" he added."
"They are so perfect and I want to wear them even when I'm at home!"
"Adalia had written on her Instagram page. "You did an amazing job and I wish you could make all my clothes! I love you so much and send you a million hugs."
Source: Proto Thema
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