In Cyprus the exact number of rare patients is not known, although based on European statistics, it is estimated to be between 60,000 and 80,000, it was reported at a press conference of the Pancyprian Alliance for Rare Diseases (PASP) on the occasion of the World Rare Disease Day.
According to a statement by the PASP, "the majority of rare diseases, about 80%, are due to genetic and/or hereditary causes, with some of the diseases being geographically defined within a country".
For example, in Cyprus there are locally defined diseases such as Cystic Fibrosis in Athienou, Amyloidosis (Crusaders' Disease) in Pahna, Friedreich's ataxia in Paphos, etc."
As it was said at the Press Conference, "the challenges facing a patient with a rare disease today, BR\]
(CNA)
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